End of Life Choices
Voluntarily Stopping Eating and Drinking (VSED)
Voluntarily Stopping Eating and Drinking (VSED) is a natural way to die. Before beginning the process, it is important that you find support from your caregivers, friends, family and physician. It is legal to refuse any medical treatment including food and liquids. Unlike the Death with Dignity Act, VSED does not require a doctor’s authorization or a terminal prognosis. It takes determination and support, but it is usually not painful and can lead to a peaceful death.
General Information
Managing Symptoms
Hunger and thirst tend to be experienced more by those who have had a healthy appetite up until they start this process. People near death have usually decreased their intake of food and fluids already and tend to experience little or no hunger and thirst. Those near unconsciousness will likely have no symptoms.
Drinking any liquids will slow the process and, as a result, make it more uncomfortable.
Agitation and delirium may occur. Hospice nurses and the patient’s physician can make recommendations for treating these symptoms. (See Appendix B for a more detailed list of possible symptoms.)
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Medications
Talk to your doctor about stopping all medications except those for pain or discomfort. You should talk to your physician or hospice nurse about all the medications you take and eliminate those that might contribute to thirst or dry mouth.
Caregiver Advice for Nursing Homes and Other Facilities
Problems have sometimes occurred when a person decides to stop eating and drinking and resides in a nursing home or other care facility. It is important that the person and family (or friends) meet with the facility director or supervisor to review the person’s care needs and come to an agreement before starting. The caregiver should act as an advocate for the patient, making sure that his/her wishes are honored.
Recognize that not feeding a patient may be difficult for some staff members.
Caregivers should be understanding but firm that they expect the staff to honor the wishes of the patient. Staff may exert subtle pressures (stopping by the patient’s room with food or a drink) or act covertly to get the patient to eat or drink. Caregivers may need to be vigilant.
Voluntarily Stopping Eating & Drinking (VSED)
Rev 2.14.2020 – 12 pages
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Frequently Asked Questions
What does it mean to stop eating and drinking?
Do I need to have a terminal prognosis?
Do I need my physician’s permission to begin VSED?
Is VSED uncomfortable?
I don’t like the idea of not drinking – can’t I just stop eating?
How long does it take?
It seems like this would take a lot of willpower. Does it?
Should I keep taking my medicines?
What about my friends and family – what will this be like for them?
What kind of help will I need?
- You cannot do this alone. You will need the care of friends, family, or other caregivers during this process. If you reside in a care facility, you will need the agreement of the staff to provide support and assistance.
- Your physician is particularly important. Talk with him or her and make sure appropriate medicationwill be available to keep you comfortable.
- If you are already receiving hospice care, ask your nurses to help you prepare. If you are noton hospice, ask your physician for a referral to a local hospice provider.
- If your illness is not one that is likely to cause death within six months, your physician may want to evaluate you for depression before helping you in this way. This will reassure family, physicians, and others that your mental status is sound, and this decision is well considered.
- You may want to check with legal counsel about using VSED and having caregivers and family support you in hastening your death. There are no specific legal guidelines, protections, or immunities concerning VSED as there are with Oregon’s Death with Dignity law.
- EOLCOR volunteers will be available to offer information and guidance.
What should I do before I start?
We suggest the following:
- Talk with friends and family members who might care for you during this process. Their support is crucial.
- Talk with your physician and/or hospice nurse to let them know of your plans. Ask if they are willing to provide medications to keep you comfortable. It is unwise to begin the VSED process without a pledge of support from your medical providers that they will prescribe comfort medications. (See Appendix A for a sample letter you can send to your physician to start the process.)
- Complete an Advance Directive and state in writing the circumstances under which it is your intention to stop eating and drinking to hasten your death. Clearly state that you want no food or fluids either by mouth, IV, or feeding tube. Have your physician sign POLST orders to withhold life‐sustaining therapies and all resuscitation efforts.
- If you reside in a care facility, discuss your wishes with the staff and nursing director. You will need their agreement to support you.
- Make sure your legal affairs, healthcare directives, and funeral/memorial plans are inorder. Wrap up any unfinished business and say your goodbyes.
Resources on YouTube:
EOLCNY VSED Overview
‘Legal Options for Patient-controlled Dying in New York’ – from End of Life Choices New York, provides a clear and helpful overview of Voluntarily Stopping Eating and Drinking, or ‘VSED’.
Other Resources:
VSED Resources Northwest
VSED Resources Northwest are VSED advocates, palliative care professionals, and family members of those who have chosen VSED. Their website has a great deal of helpful information for those interested in learning more about Voluntarily Stopping Eating and Drinking (VSED).
APPENDIX A:
Sample letter to Physician About Initiating VSED
As a result, when I determine that my suffering is beyond what I am willing to tolerate, and I can only anticipate further decline,
- I plan to voluntarily stop taking therapeutic medications, food, and liquids.
- I would like your support in pursuing this legal option to end my life.
- I ask that you be willing to prescribe medications to manage my symptoms so that I may be kept comfortable until my inevitable death – even if this means I might sleep all the time.
- I request a hospice referral to support me in being comfortable during my last days at home.
- In the unlikely event that I do not die quickly and my care places an unacceptable burden on my loved ones, I would like to be transferred to an in‐patient facility that will support me in this process and continue to receive hospice care there.
- I need to know that this option will be available to me at the time of my choosing. I see the option I have described here as preferable for my family and for myself. I have discussed this plan with my loved ones and have asked for their support for whatever I decide to do. I need your support of this plan for my peace of mind so that I can proceed with enjoying whatever time I have left, free from fears about the decline in the quality of my life and suffering I consider to be intolerable.
Specific questions:
- May I count on you to support me if I proceed with my plan to voluntarily stop therapeutic medications, food, and fluids — when and if I decide that my suffering has become unbearable?
- Would you refer me to hospice now, before I initiate my plan, in order to facilitate a smooth transition for my family and me?
- Do you see any barriers that might prevent me from carrying out this plan?
- If you feel that you cannot, or will not, support me in this plan, please refer me to a physician who will support me.
APPENDIX B:
Managing Symptoms
A person using VSED may experience some or none of the following symptoms. Here are some suggested ways to manage them:
Thirst
Offer crushed ice or ice chips sparingly. Use humidifier in room. Ask hospice nurse or physician for artificial saliva, or oral sprays. Follow physician’s recommendations for giving morphine if ordered for pain, as it can also relieve the sensation of thirst.
Dry Mouth
Offer mouth rinse (to spit out): saltwater, hydrogen peroxide and water, or mouthwash (non-alcoholic). Brush teeth, tongue, and gums with toothbrush. Remove debris from mouth. Moisten mouth with damp swab. Have patient suck on edge of wet cloth.
Use lip moisturizers. Ask your physician about avoiding Glycerin, which is drying. Ask your doctor for liquid Benadryl or Viscous Xylocaine. Avoid medications that cause dry mouth or ask your physician about this.
Dry Skin
You may consider using a humidifier in the room. Use unscented moisturizer on skin. A soft mattress or extra padding on the bed may reduce discomfort.
Hunger
Offer distractions. Avoid cooking smells in the room.
Nausea
(Rare) Offer distractions. Avoid cooking smells in the room. Ask your doctor if anti‐nausea suppositories might be helpful.
Weakness
Encourage rest and sleep between periods of activity (if any). Help the person find a comfortable position by turning, placing pillows,
etc. Obtain a bedside commode or use a bedpan – the person will only urinate small amounts. Weakness will increase as the days progress.
Agitation
(Rare) Ask your doctor about sedatives or anti‐anxiety medication. Talk with the person, read to them, provide music, etc.
The person will usually become sleepy and more lethargic each day. Some people become unconscious after a few days; others stay clearheaded and awake until the end.
Questions?
If you are considering VSED and have questions, please call us at 503-922-1132 or complete the secure online form.
Our Intake Coordinator will contact you within 1-2 business days.
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